About Me

Welcome to my blog. Thanks for dropping in. I am Lisa, I have been married to Chris for almost 9 years now, and we have two gorgeous girls, Eloise and Tabitha who are 8 and 6. Tabitha has a rare genetic disorder called Langer-Giedion syndrome (aka TRPS type II), which causes numerous health and developmental problems for her, but she is still a happy little girl and makes us smile all the time. I enjoy crafting, and have a rapidly expanding amount of crafting goodies, with not enough space to store them all! Contact me at lisa.seriousstamper@gmail.com

Tuesday 7 June 2011

What does it mean?

I've become aware recently that Tabitha is wanting to walk less and less. She is demanding to be carried more, and is taking longer to get anywhere. I've also noticed a deterioration in her gait, she has more of a pronounced limp. I don't know what is causing this, whether its the leg length discrepancy increasing, or if her exostoses are beginning to impact on her mobility, or if she is in pain.

Once again, I wish she could talk....

Monday 6 June 2011

I had a dream...

...last night. I dreamt that just from nowhere, Tabitha started talking. I think she said "I'm tired Mummy and I want to go home". She had no idea what those words meant to me, but I grabbed her and hugged her, and told her if that was what she wanted, we'd go (I have no idea where we were!). I woke up with a smile on my face. Then I realised that it wasn't real, and it hadn't happened.

I don't know if my little girl can or will ever speak, but this dream showed me how desperately I want her to. Life is so much harder without communication, it's a fundamental part of being human. I know there are aids available out there, but what about a child who just doesn't get language? And when do you decide that they just won't ever be able to speak and communicate? Tabitha does try, but she can't get it right. No matter how much she tries to say "mama", it comes out "bub bub". And she's 6 and a half. Time marches on, but in so many ways, she just doesn't, she stays static.

Anyone out there got a handy and reliable crystal ball?