Linking people in the Blogsphere

Its not so long ago that being diagnosed with a rare disorder would leave you (or your family) isolated, with no way of contacting others in the same boat. You might meet 'professionals' who would know something, however small, about your condition, but you were unlikely to actually find other people who knew what the day-to-day was like, how you actually felt emotionally, not just physically. For this reason, I am grateful for the advent of the internet. Through email, blogs and online support groups I have found people with children with Tabitha's condition all over the world. Ok, there aren't many of them, but they ARE there, and we are making connections.

One such Mother is Louise, whose son, Ben, is in his late teens. I follow her blog and find her insights both thought provoking and interesting, and incredibly well written. Please take time to read her blog post here. She so eloquently describes her feelings and experiences, and I found it so touching, and this post has made me feel very emotional today.

'In each other's eyes, we are enough'. Never a truer word spoken.