I have some exciting news that I will be sharing soon, but in the mean time I was musing today about things in general. I often surf the blogsphere, and find many, many other blogs written by people who are living lives outside of the norm. Those whose lives took an unexpected turn. I find them so interesting, there are those who embraced the change and those who fought it. Those who are grateful for it, and those who struggle with the reality, and today I feel it's right to tell you which side of the fence I come down on.
My daughter is beautiful. She is loving, she is gorgeous. She is affectionate, stubborn and willful, and has funny little ways that keep all of us entertained and challenged regularly. There are people out there, who face difficulties like ours, and welcome them, who wouldn't be without them. I have to say I am not one of those people. My daughter is fantastic, and I wouldn't be without her, but would I chose to have her exactly the same as she is if I could change things? No, I wouldn't. How could I say I would chose to have a child who would require 20 surgeries before she was 4. How could I say I would chose a child with a disorder as distressing as cyclic vomiting, rather than having a healthy child? How could I chose to have a child who faces daily pain in the future, with a substantial risk of loss of mobility, rather than a child who will grow, and run and play with their peers normally?
My daughter is unique and wonderful, and I reiterate, I wouldn't be without her. But if I had the option to have Tabitha exactly as she is, or healthy, I have to say, I would go healthy every time.
About Me
- Lisa
- Welcome to my blog. Thanks for dropping in. I am Lisa, I have been married to Chris for almost 9 years now, and we have two gorgeous girls, Eloise and Tabitha who are 8 and 6. Tabitha has a rare genetic disorder called Langer-Giedion syndrome (aka TRPS type II), which causes numerous health and developmental problems for her, but she is still a happy little girl and makes us smile all the time. I enjoy crafting, and have a rapidly expanding amount of crafting goodies, with not enough space to store them all! Contact me at lisa.seriousstamper@gmail.com
Lisa, that is a lovely thought provoking post. xxxx
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